Again, let me note that I am not a doctor and I do not diagnose nor prescribe. The information given in these pages is for educational use only.

 

Here are some urls on Familial Mediterranean Fever which your doctor may be interested in. Either copy these materials and give them to him/her  or give him/her the urls. There are now 72 mutations to genes that have been found that CAUSE FMF and there may be many more out there still left to find. This illness mimics so many things!!

 

Tell  your doctor that while you know he may not believe Familial Mediterranean Fever is what is causing your problems, you HAVE the ancestry from which it is possible to inherit it. ---- DON'T TELL your doctor that you are NOT sure about your connections or you will be setting yourself up for a definite NO when you ask for a trial of the medication.

 

Tell him that you have cousins who have BEEN DIAGNOSED with this illness who are now healing. You are not lying. Over 600 people in the last few years, some of them cousins to you, have taken colchicine and are now healing. The medication colchicine will NOT hurt you taken in the amount needed to control this illness according to my doctor, EVEN if you do NOT have this disease. You can tell him this from your cousin NANCY who has this illness. :-)

 

First I want you to go to a website where you will have to register. http://thelancet.com - This is the DOCTOR's JOURNAL that ALL doctors USE!!! It is FREE but in order to search you have to fill out the registration form. They want to know what field you are in. I believe there is a field called RESEARCH or something like that. FILL That one in. You are doing RESEARCH. :-) Once you get the registration screen name and password, you can search for anything medical. In the search engine put Familial Mediterranean Fever. A LOT will come up. The peice you are looking for is:

 

Familial Mediterranean fever
Eldad Ben-Chetrit, Micha Levy
[PDF <http://pdf.thelancet.com/pdfdownload?uid=llan.351.9103.editorial_and_review.7564.1&x=x.pdf>] 
Volume 351 Issue 9103 Page 659
Click on the TEXT connection for this peice and it will come up. PRINT the whole thing out then go back and click on those diagrams (MAP of spread of FMF and the other one showing HOW FMF works.) Enlarge those by clicking on them and print them out too.

 

 Here are some other URLS that you can go to, and print out EACH one of these as well.
This first one is the interview that I gave to the reporter for WIRED.COM News which notes the possibility of Melungeon Heritage for those of you who also have this possibility.
Tracing Heritage Through Disease http://www.wired.com/news/technology/0,1282,53256,00.html

 

This one gives a little overview of the Melungeons.
Legends of a Lost Tribe's Origin
 http://www.wired.com/news/medtech/0,1286,53325,00.html

 

Sephardi Disorders
Familial Mediterranean Fever
http://www.jewishgeneticscenter.org/what/sephardi/familial.asp

 

Print out the peices from the following urls. Staple each by itself and include it in what you are sending to the doctor.
NORD - National Organization for Rare Disorders, Inc. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Mediterranean%20Fever%2C%20Familial

 

Gale Encyclopedia of Medicine: Familial Mediterranean fever http://www.findarticles.com/cf_dls/g2601/0005/2601000525/p1/article.jhtml

 

eMedicine - Mediterranean Fever, Familial : Article by John Meyerhoff, MD http://www.emedicine.com/MED/topic1410.htm

 

QJMed -- Abstracts: Grateau et al. 93 (4): 223 http://qjmed.oupjournals.org/cgi/content/abstract/93/4/223

 

Familial Mediterranean Fever2
http://www.thedoctorsdoctor.com/diseases/familialmedfever.htm

 

FMF index
http://www.med.gazi.edu.tr/journal/1998_2_89_91.html

 

Familial Mediterranean Fever and Related Disorders: Genetics and Disease Characteristics
This study is currently recruiting patients. You have to pay for your transportation to Bethesda, and your room and meals while there, approximately two nights, but ALL tests, labs, doctors exams are FREE, paid for by our taxes

 

 

Contact info:
Beverly Barham – 1-888-996-4267

 

Please call for information on being included in this study rather than applying over the website.

 

There is also an active support group for those who believe that they have Familial Mediterranean Fever. Please go to yahoogroups.com and search for the fmf_support group. Please feel free to join us on this list.

 

If I can be of further help to anyone, please feel free to e-mail me at:

nmorri3924@aol.com

 

 

 

 

The MELUNGEON HEALTH EDUCATION AND SUPPORT NETWORK:
http://www.melungeonhealth.org

Melungeon Printed Resources:
http://melungeonhealth.org/resources.html

ONE HUNDRED and SIXTY-NINE Melungeon and associated websites:
http://melungeonhealth.org/websites.html

A Melungeon mailing list that is family friendly - send an e-mail to:
Melungeons-subscribe@topica.com

Melungeon Definition:
http://www.geocities.com/mikenassau/definition.htm
Also includes several urls.

Melungeon Information and Common Surname List:
http://sparksgenealogy.com/melungeons.html

Diagrams of physical characteristics
http://melungeonhealth.org/info.html

Fibromyalgia in YOUR family? Inherited? Maybe!!Causes of Fibromyalgia, Nancy, Fibromyalgia
http://www.holisticonline.com/Remedies/CFS/fib_causes_nancy.htmMelungeonDNA info
http://www.geocities.com/bourbonstreet/inn/1024/DNAannouce.html

Sparks Genealogy: http://SparksGenealogy.net
(Select: Index/Nancy's Corner/The Melungeon Connection)
(Select: Index/The Melungeon Media Release)

Searching SPARKS, HAGER, JAYNE, RAMEY/REMY, COLLINS, MUSICK, WALKER, PORTER
                MAYO, CAREY/CARY NAPIER,QUEEN, PERDUE, KELLEY, LETT,